December 2019 December had finally arrived. “The most wonderful time of the year” was here and we were a solid party of four. Looking back on it I still can’t believe we have celebrated two holiday seasons with a DIPG diagnosis. When I tell people LJ was given 9-12 months they usually look at him […]Read More Christmastime Chaos
2020 In 2015 my stepdad drowned causing my mom’s and our world was turned upside down. In 2016 we lost our dog and my dad within a month of each other while enduring a six month deployment. In 2017 Joshua and I would both lose grandparents, his Papa and my Grandma, who were vital in […]Read More Strong and Courageous.
I written a lot about scananxiety that shows itself around cancer diagnosis related scans but what about all the time that isn’t around scans that is filled with anxiety? I am a psychology major and very distinctively remember learning about panic and anxiety disorders. Truthfully, I thought these were “make believe” disorders, something a patient […]Read More Anxiety.
November 2019 Most people who have known us for a while, know we’ve always been pretty busy. Planning a trip or a busy month are things that I’m pretty good at doing. It shouldn’t be a surprise that with the holidays approaching November wouldn’t have us slowing down. But post diagnosis things sure have changed, […]Read More Grateful and Blessed.
October 2019 October is one of my favorite months of the year because it is the month of EMMALEIGH! Most of the time you can find us in Disney World celebrating our birthday girl at some point during October but this year she spent her birthday on a homecoming parade float! She has become quite […]Read More A Month of Treats!
September 2019 Once you become a cancer family your world kind of slows down then it can rapidly speed up as you decide what your role will be in fighting the battle of whatever type of cancer you are up against. When we were leaving the hospital on D-day, the day LJ was diagnosed, the […]Read More Cancer Family
AUGUST 2019 August started out with one of LJ’s biweekly blood draws at the Liberty Campus of Cincinnati Children’s Hospital. It was the best blood draw yet. LJ sat on my lap, just me, a nurse, and of course nurse Emmaleigh were in the room, his port was accessed effortlessly while he chatted with us. […]Read More Normalcy
July 2019 The summer kept chugging along and we were really enjoying our time at a weekly meetup with other homeschoolers called Wild + Free. While there a woman asked me what was LJ’s prognosis (not randomly but I was telling her about why we moved to Ohio) and the best way I could explain […]Read More 2 TDYs and 1 Trip
June 2019 June was a whole entire month that we did not leave the state of Ohio. We did not even venture into Kentucky. This is why we asked for humanitarian orders from Alaska. We needed some stability and man, not unpacking suitcases, well except for that last weekend, feel SO good. Just cooking meals, […]Read More A Month at Home!
May 2019 I don’t know what it is about little boys, well all boys, and monster trucks but there is an undeniable innate connection. We took LJ to his first Monster Jam in March 2018 right after we arrived in Cincinnati and right before he began radiation. He fell instantly and madly in love! Fast […]Read More Best Week Ever!