May 2020 May was here! It was celiac awareness month, brain cancer awareness month, a month with DIPG awareness day, and our little superhero’s 5th birthday. I really think May will always be a weird month for us from now on. A month where we get to celebrate our son but also a month where we […]Read More 5 > 4
APRIL 2020 April was an entire month of togetherness and a slow-paced quarantined life. Our family had so much to be thankful for during this weird time in our country. We took togetherness to a whole other level this month though, being as we don’t have family near us, it has been the four of […]Read More 672 Days of Chemo.
March 2020 We had no idea March would turn out the way it did, but the month started out hopeful and exciting! We started with more roller skating, a beautiful day at the park with our Wild + Free group, and story time at the library! LJ’s glasses came in and he looked so grown […]Read More Shutting Down Disney
There really is no easy way of explaining how I felt the weeks leading up to LJ’s two year post diagnosis mark. Sometimes I can only relate our life to being stuck on a rollercoaster that is making you sick but you never want the ride to stop. We were coming off a “bad scan” so […]Read More But God,
LJ turns 4!! May 2019 February 13th, 2018 we were told our little guy had a brain tumor that would kill him in 9-12 months. We celebrated his third birthday as if it would be his last. We were mourning our child on his birthday. Soaking up every present he unwrapped, the way he licked […]Read More 461 Miracles.