Casually Chaotic.

June 2020 We came back from camping and rolled right into June. We spent the first of June taking care of our little Celiac. She had her yearly check up with the gastroenterologist and looked so cute rocking her pigtails that were helping her mask stay on. She had to have bloodwork done and though […]

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672 Days of Chemo.

APRIL 2020 April was an entire month of togetherness and a slow-paced quarantined life. Our family had so much to be thankful for during this weird time in our country. We took togetherness to a whole other level this month though, being as we don’t have family near us, it has been the four of […]

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RSV and Rollerskating!

LJ’s last scan showed his tumor increased by 13%. The time following news like that is always odd. A mix of pain because the monster just won’t get out of my baby’s head and joy because LJ is completely symptom free. Well kinda. For a week or so after the scan LJ was showing symptoms, […]

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Anxiety.

I written a lot about scananxiety that shows itself around cancer diagnosis related scans but what about all the time that isn’t around scans that is filled with anxiety?  I am a psychology major and very distinctively remember learning about panic and anxiety disorders. Truthfully, I thought these were “make believe” disorders, something a patient […]

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Cancer Family

September 2019 Once you become a cancer family your world kind of slows down then it can rapidly speed up as you decide what your role will be in fighting the battle of whatever type of cancer you are up against. When we were leaving the hospital on D-day, the day LJ was diagnosed, the […]

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Normalcy

AUGUST 2019 August started out with one of LJ’s biweekly blood draws at the Liberty Campus of Cincinnati Children’s Hospital. It was the best blood draw yet. LJ sat on my lap, just me, a nurse, and of course nurse Emmaleigh were in the room, his port was accessed effortlessly while he chatted with us. […]

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2 TDYs and 1 Trip

July 2019 The summer kept chugging along and we were really enjoying our time at a weekly meetup with other homeschoolers called Wild + Free. While there a woman asked me what was LJ’s prognosis (not randomly but I was telling her about why we moved to Ohio) and the best way I could explain […]

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A Month at Home!

June 2019 June was a whole entire month that we did not leave the state of Ohio. We did not even venture into Kentucky. This is why we asked for humanitarian orders from Alaska. We needed some stability and man, not unpacking suitcases, well except for that last weekend, feel SO good. Just cooking meals, […]

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Best Week Ever!

May 2019 I don’t know what it is about little boys, well all boys, and monster trucks but there is an undeniable innate connection. We took LJ to his first Monster Jam in March 2018 right after we arrived in Cincinnati and right before he began radiation. He fell instantly and madly in love! Fast […]

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461 Miracles.

LJ turns 4!! May 2019 February 13th, 2018 we were told our little guy had a brain tumor that would kill him in 9-12 months. We celebrated his third birthday as if it would be his last. We were mourning our child on his birthday. Soaking up every present he unwrapped, the way he licked […]

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