Casually Chaotic.

June 2020 We came back from camping and rolled right into June. We spent the first of June taking care of our little Celiac. She had her yearly check up with the gastroenterologist and looked so cute rocking her pigtails that were helping her mask stay on. She had to have bloodwork done and though […]

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5 > 4

May 2020 May was here! It was celiac awareness month, brain cancer awareness month, a month with DIPG awareness day, and our little superhero’s 5th birthday. I really think May will always be a weird month for us from now on. A month where we get to celebrate our son but also a month where we […]

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But God,

There really is no easy way of explaining how I felt the weeks leading up to LJ’s two year post diagnosis mark. Sometimes I can only relate our life to being stuck on a rollercoaster that is making you sick but you never want the ride to stop.  We were coming off a “bad scan” so […]

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13%

We have been so lucky to spend the time surrounding LJ’s MRI’s at the Great Wolf Lodge. This time we were able to check in the night before giving us time to unwind before he had scans the next morning. I use the term unwind very lightly because regardless where you are in the world […]

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Grateful and Blessed.

November 2019 Most people who have known us for a while, know we’ve always been pretty busy. Planning a trip or a busy month are things that I’m pretty good at doing. It shouldn’t be a surprise that with the holidays approaching November wouldn’t have us slowing down. But post diagnosis things sure have changed, […]

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Even If…

April 2019 Now that our major house projects were complete we were able to settle in and start filling up our schedule! I found an awesome group of homeschoolers that met at a park near our house weekly to let their kids run wild and free! If you know Em you know this is exactly […]

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Scanxiety

February 2019 MRI It was February, and MRI time. Scans are scary for anyone but when you have cancer it is another level of scary. You are checking up on a monster that is trying to kill you or in our case, our son. LJ had scans about every other month since June, it’s part […]

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