LJ’s last scan showed his tumor increased by 13%. The time following news like that is always odd. A mix of pain because the monster just won’t get out of my baby’s head and joy because LJ is completely symptom free. Well kinda. For a week or so after the scan LJ was showing symptoms, […]Read More RSV and Rollerskating!
December 2019 December had finally arrived. “The most wonderful time of the year” was here and we were a solid party of four. Looking back on it I still can’t believe we have celebrated two holiday seasons with a DIPG diagnosis. When I tell people LJ was given 9-12 months they usually look at him […]Read More Christmastime Chaos
July 2019 The summer kept chugging along and we were really enjoying our time at a weekly meetup with other homeschoolers called Wild + Free. While there a woman asked me what was LJ’s prognosis (not randomly but I was telling her about why we moved to Ohio) and the best way I could explain […]Read More 2 TDYs and 1 Trip
Our First Home! Buying a home is a stressful time for anyone but all that anticipation usually goes away when you get keys to your new house. When you are buying a house in the midst of a cancer diagnosis there is a whole new layer of emotion. A few of the thoughts that went […]Read More Sorry Dave… We Bought a House!