June 2020 We came back from camping and rolled right into June. We spent the first of June taking care of our little Celiac. She had her yearly check up with the gastroenterologist and looked so cute rocking her pigtails that were helping her mask stay on. She had to have bloodwork done and though […]Read More Casually Chaotic.
APRIL 2020 April was an entire month of togetherness and a slow-paced quarantined life. Our family had so much to be thankful for during this weird time in our country. We took togetherness to a whole other level this month though, being as we don’t have family near us, it has been the four of […]Read More 672 Days of Chemo.
LJ’s last scan showed his tumor increased by 13%. The time following news like that is always odd. A mix of pain because the monster just won’t get out of my baby’s head and joy because LJ is completely symptom free. Well kinda. For a week or so after the scan LJ was showing symptoms, […]Read More RSV and Rollerskating!
There really is no easy way of explaining how I felt the weeks leading up to LJ’s two year post diagnosis mark. Sometimes I can only relate our life to being stuck on a rollercoaster that is making you sick but you never want the ride to stop. We were coming off a “bad scan” so […]Read More But God,
JANUARY 2020 After a whirlwind of a month in December I was really looking forward to some down time in January! Both our moms were coming to visit but other than that we didn’t have any major plans. We celebrated New Years Eve on the 1st because our kids lost their minds about 9pm waiting […]Read More Happy New Year?
We have been so lucky to spend the time surrounding LJ’s MRI’s at the Great Wolf Lodge. This time we were able to check in the night before giving us time to unwind before he had scans the next morning. I use the term unwind very lightly because regardless where you are in the world […]Read More 13%
November 2019 Most people who have known us for a while, know we’ve always been pretty busy. Planning a trip or a busy month are things that I’m pretty good at doing. It shouldn’t be a surprise that with the holidays approaching November wouldn’t have us slowing down. But post diagnosis things sure have changed, […]Read More Grateful and Blessed.
July 2019 The summer kept chugging along and we were really enjoying our time at a weekly meetup with other homeschoolers called Wild + Free. While there a woman asked me what was LJ’s prognosis (not randomly but I was telling her about why we moved to Ohio) and the best way I could explain […]Read More 2 TDYs and 1 Trip
June 2019 June was a whole entire month that we did not leave the state of Ohio. We did not even venture into Kentucky. This is why we asked for humanitarian orders from Alaska. We needed some stability and man, not unpacking suitcases, well except for that last weekend, feel SO good. Just cooking meals, […]Read More A Month at Home!
LJ turns 4!! May 2019 February 13th, 2018 we were told our little guy had a brain tumor that would kill him in 9-12 months. We celebrated his third birthday as if it would be his last. We were mourning our child on his birthday. Soaking up every present he unwrapped, the way he licked […]Read More 461 Miracles.