AUGUST 2019 August started out with one of LJ’s biweekly blood draws at the Liberty Campus of Cincinnati Children’s Hospital. It was the best blood draw yet. LJ sat on my lap, just me, a nurse, and of course nurse Emmaleigh were in the room, his port was accessed effortlessly while he chatted with us. […]Read More Normalcy
July 2019 The summer kept chugging along and we were really enjoying our time at a weekly meetup with other homeschoolers called Wild + Free. While there a woman asked me what was LJ’s prognosis (not randomly but I was telling her about why we moved to Ohio) and the best way I could explain […]Read More 2 TDYs and 1 Trip
June 2019 June was a whole entire month that we did not leave the state of Ohio. We did not even venture into Kentucky. This is why we asked for humanitarian orders from Alaska. We needed some stability and man, not unpacking suitcases, well except for that last weekend, feel SO good. Just cooking meals, […]Read More A Month at Home!
May 2019 I don’t know what it is about little boys, well all boys, and monster trucks but there is an undeniable innate connection. We took LJ to his first Monster Jam in March 2018 right after we arrived in Cincinnati and right before he began radiation. He fell instantly and madly in love! Fast […]Read More Best Week Ever!
LJ turns 4!! May 2019 February 13th, 2018 we were told our little guy had a brain tumor that would kill him in 9-12 months. We celebrated his third birthday as if it would be his last. We were mourning our child on his birthday. Soaking up every present he unwrapped, the way he licked […]Read More 461 Miracles.
Family Vacation, May 2019 We’ve taken some pretty epic road trips in our marriage. We’ve driven from Florida to South Carolina about 500 times. Then that one time we drove from Cuba to Russia…just kidding, it was only Homestead, FL to Anchorage, AK! Our kids are the best at traveling in the car and definitely […]Read More Be Still.
April 2019 Now that our major house projects were complete we were able to settle in and start filling up our schedule! I found an awesome group of homeschoolers that met at a park near our house weekly to let their kids run wild and free! If you know Em you know this is exactly […]Read More Even If…
Our First Home! Buying a home is a stressful time for anyone but all that anticipation usually goes away when you get keys to your new house. When you are buying a house in the midst of a cancer diagnosis there is a whole new layer of emotion. A few of the thoughts that went […]Read More Sorry Dave… We Bought a House!
We arrived in Cincinnati for an unknown amount of time in March 2018. I was really worried about Emmaleigh’s mental health and asked the social worker that was assigned to us through the children’s hospital if there were any sibling programs that could help Emmy cope with our life. She quickly said The Dragonfly Foundation. […]Read More The Dragonfly Foundation
February 2019 MRI It was February, and MRI time. Scans are scary for anyone but when you have cancer it is another level of scary. You are checking up on a monster that is trying to kill you or in our case, our son. LJ had scans about every other month since June, it’s part […]Read More Scanxiety